Florida’s Sickle Cell Registry

Parents

Florida’s Sickle Cell Registry established in §383.147(2)(a), Florida Statutes, requires a newborn or an infant identified as having sickle cell disease or trait to have the results of such screening included in a sickle cell registry (SCR).  The purpose of the registry is to monitor trends in diagnosis, treatment, and healthcare access for those living in Florida who have been identified with sickle cell disease and sickle cell trait.

The parent/legal guardian of a newborn or an infant can decide not to have their child’s information included in the Florida SCR.  Download or complete the Opt-Out form below.

Download Opt-Out Form
Complete Opt-Out Form Online

For more information about opting out of Florida’s Sickle Cell Registry, please contact the Florida NBS Follow-up Program.

Address:
Florida Newborn Screening Program
Division of Children’s Medical Services
Florida Department of Health
4052 Bald Cypress Way, Bin A-06
Tallahassee, FL 32399-1707
Attn: Sickle Cell Registry

Phone: 833-956-0324

Email: [email protected]

For more information about the Sickle Cell Registry, please visit https://scdregistry.org/.