Florida’s Sickle Cell Registry established in §383.147(2)(a), Florida Statutes, requires a newborn or an infant identified as having sickle cell disease or trait to have the results of such screening included in a sickle cell registry (SCR). The purpose of the registry is to monitor trends in diagnosis, treatment, and healthcare access for those living in Florida who have been identified with sickle cell disease and sickle cell trait.
The SCR is completely voluntary. However, a minor’s parent/legal guardian or an individual who is 18 years or older can decide at any time to have their child’s information removed from the SCR by completing this Opt-Out Form.
For additional information about Florida’s Sickle Cell Registry, please visit https://scdregistry.org/
