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News & Updates

Find out about program updates, news features, and families helped by newborn screening.


What do I do if the parents refuse the screen?

While not recommended, parents may refuse newborn screening for any reason. The person responsible for collecting the specimen must obtain a written refusal from the parent and include it in the child’s medical record. The written refusal serves as documentation confirming the parents were informed of the possible adverse outcomes of not performing newborn screening and they accept legal responsibility for the consequences of their decision.

Testing for Spinal Muscular Atrophy (SMA)

The Florida Department of Health, Newborn Screening (NBS) Program, is pleased to announce that beginning April 27, 2020, all newborns screened will be tested for a new condition, Spinal Muscular Atrophy (SMA). If you have any questions, please contact the